Advancing Equity and Inclusive Research

Why you should enrol for this course.

FREE UNTIL 1st April 2025.

Advancing Equity and Inclusive Research in Rare Diseases: Module 1

Imagine living with a rare disease and feeling unseen by the very systems meant to help you. For millions worldwide, this is a daily reality. Rare disease research has the power to transform lives, but only if it fully includes and understands the needs of the diverse communities it serves.

Dr. Sondra Butterworth, with support from Costello Medical, has developed this microlearning course:

Advancing Equity and Inclusive Research in Rare Diseases: Module 1 – Overview of Equality, Diversity, and Inclusion in Rare Disease Research.

This free microlearning course is a call to action for researchers, healthcare professionals, and advocates to champion health equity and ensure that no one is left Behind.

Course curriculum

1. How to use this course
1. Session 1: Understanding EDI: The Core of Inclusive Research
2. Activity 1: EDI and Intersectionality
3. Session 2 : Health Equity
4. Session 2 Activity: The Patient Voice
5. Session 3: Advancing Rare Disease Research
6. Intersecting Factors Article written by Dr Sondra Butterworth
7. The Rare Diseases Framework
8. Activity 3: Quiz - Rare Diseases Framework Priorities
9. Activity 3 Quiz Explanations: Answer 1
10. Activity 3 Quiz Explanations Answer 2
11. Activity 3 Quiz Explanations Answer 3
12. Activity 3 Quiz Explanation Answer 4
1. Module 1 Summary: the Road to Inclusive Research
2. Downloadable workbook
3. Course evaluation